Carers of People with Dementia: Their Personal Stories @Healthtalkonline

Healthtalkonline is the award-winning website of the DIPEx charity (a registered charity funded by the Department of Health (UK). Healthtalkonline lets you share in other people's experiences of health and illness. You can watch or listen to videos of the interviews, read about people's experiences and find reliable information about conditions, treatment choices and support.

Based on qualitative research into patient experiences, and led by experts at the University of Oxford, these personal stories of health and illness will enable patients, families and healthcare professionals to benefit from the experiences of others.

This section of the site contains videotaped interviews of 31 people about their experiences of caring for a person with dementia, and includes the following topics:

• Suspicions - early signs of dementia
• Signs of dementia
• Severe dementia
• Making the diagnosis
• Tests
• Getting the diagnosis
• Genetic testing
• Ideas about causes of dementia
• Treatment :
• Treatment for Alzheimer's disease
•  Relieving symptoms
•  Strategies- some suggestions from carers
• Becoming a carer :
• Becoming a carer
• Caring from a distance
•  Friends and family
•  Sources of support
•  Assessments and care plans
•  Home carers
•  Day care and respite
•  Problems with provision
•  Looking for information
• Arranging residential care
• Becoming a resident
• Spacer
• Difficult decisions :
• Wandering
• Driving
• Money
• Self care
• Respect
• Living with change
•       Complicated emotions
•       End of life

http://www.healthtalkonline.org/Nerves_and_brain/Carers_of_people_with_dementia